Heres what you need to know. 2023 Dotdash Media, Inc. All rights reserved, Mary Shomon is a writer and hormonal health and thyroid advocate. If you are considering Mayo and not able to see Dr. Hay - he isn't always available for new patients - just go to any Endo! But, Im questioning if I feel well enough and have healed? Before your surgery, an anesthesiologist will give you general anesthesia to relax your muscles, prevent pain and make you fall asleep. 2017 Aug;24(8):2189-2198. doi: 10.1245/s10434-016-5691-4. Im very thankful to find this support group. #,OuLjRhbTwZF'! Thanks for listening, Lump or swelling after thyroidectomy - Thyroid UK - HealthUnlocked I never thought of that before. After my TT, I had a TG of 70 un-stimulated, so did RAI at 100mci. Neck Swelling after TT - Thyroid cancer - Inspire It does get better though, just slowly. I feel so desperate for this to go away. None of the patients experienced permanent hypoparathyroidism or recurrent laryngeal nerve damage. As others have said, he knows your story before you get there (they all do!) Randle RW, Bates MF, Long KL, Pitt SC, Schneider DF, Sippel RS. After completing this course of medication, I could feel that the swelling had slightly gone down but then the swelling came back around April 13 when I tested positive for COVID. JAK inhibitors are helping patients with alopecia areata, eczema/atopic dermatitis, psoriasis, and vitiligo. Nausea and vomiting after thyroidectomy was the norm at one time, and people may be concerned if they talk with others who had this procedure in the past. I am so grateful for all of the information that is exchanged on this forum, and wanted to share my recent experience at Mayo with Ethanol Ablation. Having a total thyroidectomy on tuesday for gd but ptu (propylthiouracil) has caused low t4/ft3 (ft3 0.8) i know i can't have the surgery hyper but is hypo a problem. I'm concerned that there is something going on. Looking great now! Numbness or tingling in your face, hands or lips. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. World J Surg. Depending on the surgeon, you may have stitches that will need to be removed or absorbable sutures that will not. Before Once you have recovered from anesthesia and are fully awake, youll likely be able to have something light to eat and drink. Top answers from doctors based on your search: Created for people with ongoing healthcare needs but benefits everyone. Lymph node; Metastasis; Papillary thyroid cancer; Recurrence. Our website is not intended to be a substitute for professional medical advice, diagnosis, or treatment. This community is sponsored by ThyCa: Thyroid Cancer Survivors' Association, an Inspire trusted partner. The doc said the swelling would be worse in the mornings due to the loss of so many lymph nodes and subsequent scar tissue. Didn't find the answer you were looking for? It makes hormones that control every part of your metabolism, from your heart rate to how quickly you burn calories. undefined will no longer be visible to you including posts, replies, and photos. So I had my thyroidectomy on 4/9/19. American Thyroid Association statement on outpatient thyroidectomy. For people with hyperthyroidism, the doctor will administer medications to keep thyroid hormones in balance during and after surgery. Find out what may be causing the itch and what can bring relief. 4 0 obj New upper neck mass after thyroidectomy, radioactive iodine ablation for thyroid cancer Endocrine Today | A 24-year-old with bilateral pain in her upper neck inferior to her ears and. I was reading some of your other posts and saw that you have been doing well after your procedure. Follow up.they put me on 112mcg of synthroid; my Endo used the algorithm method (using weight as a factor in deciding on doseage). If your endocrinologist recommends thyroidectomy, it may be helpful to ask your endocrinologist and/or surgeon the following questions: Your endocrinologist and surgeon will give you specific instructions to prepare for your thyroidectomy. If you are wondering what your scar may look like, the University of California Los Angeles has a scar gallery with photos of people who have had thyroid surgery at various points in the healing process. When things get really full, sometimes I use kinesio tape in addition. At Mayo, it really is "all about YOU" :) - Anyhoo - Dr. Hay reviewed all my previous medical records and explained that although my surgical record said "no lymph node dissection warranted because ultrasound showed no lymph node involvement" that NO ONE can see the lymph nodes by ultrasound that are BEHIND the Thyroid BEFORE it's taken out!. Journal of Thyroid Research. Hope you feel better soon! Most types grow slowly, though some types can be very aggressive. I really freaked out about it too. Penny. Is there any doctor that would perform a thyroidectomy with a ft4 of 48.8?, i seem to be resistent to medication and i'm willing to risk the surgery. My mom had half her thyroid out due to a benign cyst a year ago and I figured my recovery would be similar to hers plus a tad worse. While Im eager to get RAI behind me, I want to be sure Im healed enough to handle the process well. It is most likely fluid that re-entered under the suture line and should go down in a few days. Since the area around your incision will be prone to sunburns, wear sunscreen whenever you go outside for at least a year after surgery. However, that information will still be included in details such as numbers of replies. The trachea wall was so thin after removing the cancer that my surgeon had to use some of my muscle to reinforce it. 2022 Nov 30;13:1064434. doi: 10.3389/fendo.2022.1064434. Otolaryngol Head Neck Surg. Has anyone else experienced this after surgery? -TSH= 0.03 muIU/mL (0.550- 4.780) So not true. I was glad to run across this site while searching for some information. For me the incision site wasFor me the incision site was decently swollen for about 1 week, but it is still (since march) got a bit of a bump across the scar (about the thickness of a pencil).When is your followup for your surgery? I will definitely ask about neck swelling. I have my post op on Friday but its worrying me so Id thought Id ask you all beforehand. I cannot emphasize enough how efficient, caring and absolutely AMAZING each and every person was that I encountered during my 3 days there -- And from the small details to the BIG issues, every moment, every procedure, every appointment progressed in a perfect cadence - it was pure perfection! Hives These are normal sensations. How big did it get? I feel VERY lucky that I feel pretty good; have had 2 days of some nausea and a few days of lack of concentration and short term memory. Since then, the neck swelling has gone down quite a bit, but I still wake up with a "bullfrog neck", which is both uncomfortable and not really pleasing to look at. No one understands your skin better than a board-certified dermatologist. Did you also have lymph nodes removed? Thyroid disease: A checklist of skin, hair, and nail changes I constantly suffer from feeling alot of tightness in my throat. Swollen incision site. Has anyone else had this type of papillary thyroid cancer where your thyroid was normal and they could not locate the primary tumour? Lateral lymph node recurrence after total thyroidectomy and central neck dissection in patients with papillary thyroid cancer without clinical evidence of lateral neck metastasis: Comment on data sparsity. Where has this man been my whole life? I went to see my surgeon, and he said I should massage it daily, and that it would go away eventually. Has anyone had similar issues of concern? It is uncommon, but when it occurs after thyroidectomy, it is usually associated with Grave's disease. Redness or warmth at the incision site. Int J Surg. I was thinking it was lucky I didn't get sick closer to my TT. But MAJOR discomfort for awhile after that. All of your thyroid (total thyroidectomy). I alos have pain and tightness in sternal area and towars my left shoulder. I switched Endos a few months post surgery and she worked miracles for the next 6 months to abate most of my symptoms (weight gain, fatigue, hair loss, emotional imbalance, heat/cold intolerance etc) by combining Synthroid with an NDT (first tried Armour, then Nature-Throid) and going after my Vit D and B-12 deficiencies as well as anemia. Another blood test is recommended in Jul 2013, followed by a low dose radio iodine scan. The only thing that's resulting from this is soreness and stinging on each end of the incision, plus it appears to look more swollen afterwards. Find out how a board-certified dermatologist helped Natalie see clear skin before her wedding. I am having my post op apt on Wednesday this week. I had right and left dissection plus TT. Does .6 indicate there may still be cancer there? Its so great to have found a support site and to feel that we are not alone:) My journey with thyroid cancer has been a whirlwind of mixed emotions. For example, if you have a nodule on one side of your thyroid, you may need a hemithyroidectomy to remove the affected lobe. The surgeon says it is very rare, that they cannot source the primary tumor and that the cancer only showed up in a lump towards the left back of my neck. 2018;40(1):192-202. doi:10.1002/hed.24934. In addition I have had shortness of breath since the surgery even when lying in my bed doing nothing. Conclusions: Injury to the external branch of the superior laryngeal nerve is usually less obvious. When I took the outer strips off and tilted my chin up, it seemed like all of my insides (whatever is left) was pushing towards where they did my TT. Thank you, {{form.email}}, for signing up. You, too, may also be able to spot thyroid disease, and thats important. Factors predictive of the development of surgical site infection in thyroidectomy - An analysis of NSQIP database. I am scheduled for RAI end of next week and have been on the low iodine diet for 1 week. Those work really well. First of all it was as if the surgeon just left me out to dry because he didn't talk with me within those months without me strongly advocating for some kind of response. Especially, extranodal extension of a metastatic central LN (OR, 38.82; 95% CI, 5.71-264.10; p<0.001) was an independent predictor of lateral LN recurrence. Just too much holding against all of the neck structures. Depending on your reason for needing a thyroidectomy, in the weeks before your surgery: Youll need to fast (not eat or drink anything except water) for several hours before your surgery. Connect with a U.S. board-certified doctor by text or video anytime, anywhere. Papillary and follicular thyroid cancer (differentiated), New swelling after TT, lobectomy, lateral and central neck dissection, Tongue swelling after 3rd neck dissection, RAI next week, just 1 month after TT and left neck dissection. endobj And I read the same about TT being easy. They secrete parathyroid hormone that helps your kidneys and bones to maintain the balance of calcium and phosphorous. I will be SO GLAD when this is all in the past!!!!! Swelling after thyroid surgery 3 days ago, the left lobe (a 4 cm nodule was on it) and the isthmus ? I haven't had my surgery yet but my sister has and that does not seem right to me. So i'm currently finishing up my isolation from RAI (150 dose) and the scar is healing nicely. I need advice! This study analyzed the incidence, pattern, and predictive factors for lateral lymph node (LN) recurrence in patients with papillary thyroid cancer (PTC) without clinical evidence of lateral LN metastasis. These signs dont necessarily mean that you have thyroid disease. It's either from the thyroid meds, or from surgery, but I never feel strong hunger pangs and I never feel "full". The exact causes of seromas are not clear, but they are common in the breast area of people who have undergone surgery to . I'm 2 and half weeks after total thyroidectomy and although incision healing well I have considerable swelling still just below it. When you have your follow-up appointment, your surgeon will check your blood calcium level. My Endo said RAI could happen anytime within 6 months ideally. John. Rashes, especially in the creases of your skin You are at potential anesthesia risk!! I had a total thyroidectomy Jan 8, 2018 because I had eight nodules on my thyroid which by the grace wasn't cancerous but two where growing larger and began making me feel like someone hands were around my neck. Your surgeon will talk to you about whether you should continue to wear a dressing over your incision. The worst was 4 days post TT. It has been difficult but I am trying to be positive and hoping that things would get better. I am hoping a giant syringe is not in my future today. I know that I do have to stay overnight and I am expecting only to have a TT only. Doctors typically provide answers within 24 hours. Swollen Skin Under The Chin: Causes And Treatment 1 Complications occur in only about 3%-5% of patients after thyroidectomy, with tracheal perforation occurring in approximately 0.06% of cases. It could be normal swelling + extra fluid from being sick = crazy swelling. Unable to load your collection due to an error, Unable to load your delegates due to an error. Last week out of the blue my left cheek near my ear felt "bruised". Heres a photo of myself this morning. She explains that it started . As of today I can only swallow the very smallest pill without it getting hung in my throat. Any advice or suggestions would be great! Are there other forms of treatment for my condition? I was just wondering if anyone has experienced pain to the touch in their neck weeks following a neck dissection. Thinning (or missing) eyebrows on the outer edge And every day after that got a tiny bit better (though I noticed more of a difference after every few days). Keep in mind that even when complications occur, which is not common, prompt treatment is often successful to restore your health. But WAY better than the first couple weeks. Sign up for our Health Tip of the Day newsletter, and receive daily tips that will help you live your healthiest life. Do anyone have problem sleeping after the throid surgery.It seem like every position I try might hurt my surgery . My freaking neck hurts! A swollen fingertip, curved nail, and thickening skin above a nail are often signs of thyroid disease. Since it's common for the parathyroid glands to function poorly after a thyroidectomy, you may be sent home with calcium and vitamin D supplements. It is hard, solid feeling like a small rock and sensitive to touch. The knowledge and experience here is amazing and Im so grateful as Im sure everyone is. The doctor suggested not to get the Tg done this time. Relationship between subgroups of central and lateral lymph node metastasis in clinically node-negative papillary thyroid carcinoma. Some of these require prompt treatment, so it's important to be aware of them. In July 2015 I had a TT, then in November a neck dissection with the removal of dozens of lymph nodes in the deeper regions of my neck. Is it just swelling that goes away? Some people have to stay in the hospital overnight and can leave the next morning. No one told me about the long-term swelling after surgery so it has freaked me out a bit. The thyroid gland wraps around and lays on top of lymph nodes (the central section is the biggest culprit of hidden lurkers) so that after you take out the thyroid, you are bound to have lymph node involvement in the area behind the thyroid where the cancer was found. Then in December 2011, had another neck dissection on right side to remove more cancerous lymph nodes. Thanks! stream Then no talking for a week. I was told by my endo you have to heal internally also you mentioned that you have a post op appointment soon voice your concerns to him I hope you feel better soon hugs x. This is so disturbing. I can not swallow, eat and can barely talk. Your surgeon will remove the drain one or two days after the surgery. Does this only happen if they remove lymph nodes and/or you don't have a drainage tube? While around 1% of people may have damage to the nerves supplying the vocal cords, around 5% to 10% of people will have temporary symptoms due to irritation of the nerves during surgery or inflammation around the nerves afterward. From what I understand they would use an implant to close half of the vocal chord so that it functions more appropriately. Triad of exophthalmos, pretibial myxedema, and acropachy in a patient with Graves' disease. J Am Acad Dermatol. Medicine (Baltimore). eCollection 2022. I had to advocate just to get blood work. Dermatologic manifestations in patients with systemic disease. In: Bolognia JL, et al. The surgery sounds involved. Typically an expanding hematoma (collection of blood in the wound bed where the thyroid lobe was Talk with your surgeon regarding this issue asap. The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. Right side was OK. Excision biopsy was done to remove the 2.5cm swollen LN, Sep 2012. I should get Tg and TgAb tested after my follow-up iodine scan in August. I questioned whether I would be a candidate w/out previous RAI -- no answers in the research. Prediction of Cervical Lymph Node Metastasis Using MRI Radiomics Approach in Papillary Thyroid Carcinoma: A Feasibility Study. Through a standard incision in your neck. Seroma: Causes, treatment, and recovery - Medical News Today So that was the plan, but as fate would have it I mentioned the treatment plan to a pathologist friend of mine who just happened to know Dr. Hay at Mayo and within weeks I found my way to Rochester, MN (I looked no further - never did go to Washington Hosp. These signals tell your body what to do and when to do it. My wife 42, after total thyroidectomy surgery , a month later she received i-133 therapy 120 units. -Anti-Tg = 36 IU/mL (< 60) It makes swallowing and turning my head difficult. I have the book and it is very good. The pain was bad the first two days then basically went away. This is because you'll no longer have a gland to make thyroid hormone and will experience symptoms of hypothyroidism, or an underactive thyroid, without replacement therapy. In the mean time put a wet warm washcloth on it at least 4 times a day to see if that reduces the swelling, or brings puss to the surface of the wound. If not it does take some time for the body to absorb the fluid. Soft and fine hair with lots of shedding Less than 1% of people having a thyroidectomy will experience damage to either the recurrent laryngeal nerve or the external branch of the superior laryngeal nerve. Most people are advised to take roughly two weeks off from work to recuperate, depending on their occupation. The PubMed wordmark and PubMed logo are registered trademarks of the U.S. Department of Health and Human Services (HHS). Of course, during COVID-19, protocols or normal ways of doing things are different. Does it get better? I have been massaging it for 2 days, and it helps for about 3 seconds, and then i can just feel the fluid pool right back into the neck. These include: While a total thyroidectomy is more extensive surgery than a subtotal thyroidectomy, several studies suggest that the safety of the two procedures is similar with regard to complications, though temporary low calcium levels (and hypothyroidism due to the removal of the entire thyroid) are more common with the total procedure. Slowly raise your arms overhead, and then slowly lower them back down against your body. There is still some swelling and redness and it just seems to bother me a lot more. Fitzpatricks Dermatology in General Medicine (seventh edition). McGraw Hill, China, 2008:1470-4. ", Verywell Health uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. 2021 Nov 2;10(21):5144. doi: 10.3390/jcm10215144. I'm sorry you are having the swelling and pain. All of that to say that my surgery was very involved. I'll say it's not quite golfball size but close. Image 1: Getty Images One Gp even did a white blood cell count blood test to check for any cancer markers and all was clear. How long does the swelling and tightness last? The ablation procedure is much like an FNA, though my tumor was deep and it was pretty painful. Applying a warm compress may also help. There are two main categories of thyroidectomies: Total and partial. Thyroid surgery is often done under general anesthesia with a breathing tube placed in the windpipe, or trachea, to breathe for you. Symptoms usually improve in the first few weeks but may persist up to six months after surgery. I have developed a lot of swelling above my incision and tightness in my neck (similar to whiplash). Your welcome. It may take less time if your surgeon removes only part of your thyroid. -TSH= 0.010 muIU/mL (0.550- 4.780) Difficulty swallowing. I had total thyroidectomy due to huge multinodular goiter with compression 1 week ago. Growing more slowly (or quickly) Less hair on your legs, arms, and other areas, Thick, dry, and brittle with visible ridges In the meantime, be sure to contact your thyroid-care team if you have any questions regarding your recovery process. Sorry to hear you too were unwell after surgery. In fact, I didn't sleep a wink the night it swelled up bad because I was scared I'd suffocate in my sleep. American Thyroid Association statement on outpatient thyroidectomy. The weight of thyroids removed ranged from 4.4-46 g. After surgery, four patients obtained total and permanent relief of pain. Before you leave the hospital, your healthcare provider will go over any instructions and talk about when you should follow up with your surgeon. Possible complications of general anesthesia may also occur since most thyroidectomies require it. Lee YC, Na SY, Park GC, Han JH, Kim SW, Eun YG. Fever with a temperature higher than 101.5. I went to my appointment and forgot most of what I was going to ask or say please let us know how you get on if that's ok. if it is soon (next week or so) then i would wait for the appointment. With the assistance of a robot through a distant incision in either the axilla (the space below your shoulder through which vessels and nerves enter and leave your upper arm) or the back of your neck. I too have been doing some things I probably shouldn't have. It's most easily noted from the side view. I had a ton of stiffness and pulling feeling in my neck aside from the feeling of not being able to swallow. doi: 10.1097/MD.0000000000013435. July 2010 #5. <> Over the past year since surgery, I have been getting labs done ev. I tested positive for the BRAF gene mutation. I have been doing my physical therapy exercises daily in attempts to help with the swelling. Last week I talked with my surgeon's office at MD Anderson. Dr said level should go down to 0.2. My concern is that if they don't find anything i don't want to do RAi unless absolutely necessary. I don't know about your swelling I took along time to heal and the scar tissue was horrible I think it was the hardest surgery to recovery because its always being irritated from food. It's a 3 hour surgery awake! I am having a weird puffing/swelling on either side of my incision along with skin and area becoming hard to the touch, beginning about a week and a half after initial central and lateral neck dissection to remove thyroid and a bunch of nodes (at Johns Hopkins Otolaryngology). Its my 5th week after my radiation treatment. Any advice will be much appreciated as I am scheduled for vocal cord surgery on Wednesday! 8 weeks -- My TSH has been adequately suppressed (0.02) TG levels undetectable and No TG Antibodies. Educational text answers on HealthTap are not intended for individual diagnosis, treatment or prescription. Ive learned so many helpful tips and suggestions. Im so discouraged. They commonly include: Most often calcium levels improve in a few weeks but may continue to be low for up to six months. .After my surgery I was really swollen for a very long time. All went well with the surgery, although it was a LONG one (over 10 hrs). Kalus AA, Chien AJ, et al. Does this sound like just a salivary gland complication from the RAI and has any of you had this happen to you? Have any of you had an increasing feeling of a lump in your throat at the surgery site the farther out from surgery you get? Did any of you guys experienced similar problems? Thyroid surgery: common questions and concerns. At what size is it re My mother has hyperparathyroidism. Using an over-the-counter (OTC) numbing throat spray, such as Chloraseptic, or numbing lozenges, such as Cepacol, can help with the discomfort until you are healed. I am 20 days post-op total thyroidectomy with central and left neck lymph node removal. Im due for blood work again that was about 8 months ago. Numbness or tingling of fingers, toes, or around the mouth. I had a Total Thyroidectomy with Central Compartment Neck Dissection on August 10. I would freak out if I started swelling 4 days post op. You will probably be able to shower, but should try to keep your neck as dry as possible. Had 6 months tests about a month ago, Tg is undetectable and lymph node ultrasound was normal. Although papillary with a follicular variant, my TC has behaved more aggressively than typical. He gave me a prescription for a lymphodema treatment. I used to see a therapist and it really helped. Are there any clear guidelines anywhere for when swelling crosses the line from normal to abnormal? One month out and I have a little more energy, but still feel light headed and tired. To help with swallowing I would tilt my chin down while swallowing and "hard swallowed" to help alleviate my issues. Outpatient versus inpatient thyroidectomy: A systematic review and meta-analysis. But, each day I feel more and more like I have a lump in my throat, which seems to have become worse since starting to massage the area. Before you go home, your provider will give you instructions on how to care for your incision and stitches and let you know what types of complications and symptoms you need to look out for. is a 1.5" diameter x 3" long swelling needing narcotics typical? Please would like to hear from you any thoughts? While there is no specific treatment for this hoarseness, it's helpful for your loved ones to be aware of the problem so that you don't feel the need to talk loudly or more often than is comfortable.

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